Taiwan Debra Home Care Promotion Association (abbreviated as this council). This council was set up according to Taiwanese law, as a non-profit social association. The objects of the care service are those who are in the list of rare diseases announced by the Taiwanese government as Hereditary Epidermolysis Bullosa (abbreviated as EB).
In concern with national policies that coordinate research, development and promote communication between international medical organizations on rare diseases, this council will promote cooperation on new medical knowledge about congenital skin blister diseases. The intrinsic nature of genetic diseases will be announced to the public, and in this manner, patients suffering from EB can receive the appropriate care in the struggle for social welfare.
The mission of this council is as follows:
1. To help EB patients receive the appropriate medical treatment and care.
2. To help hospitals to promote medical treatment and care for EB patients.
3. To coordinate research and education on the treatment of EB.
4. To integrate communication and activities on matters regarding EB.
5. To gather the latest information on medical treatment and care by participating in international conferences on new EB knowledge.
6. To assist in delivering professional EB knowledge.
7. To publish written materials on EB developments and professional knowledge.
8. To improve the social welfare of EB patients.